Hailey Barber McKirdy was just six years old when she had a stroke. Now in her thirties, she continues to navigate the daily realities of living with an acquired brain injury.
鈥淚 find it makes everything that little bit more tricky,鈥 she says, 鈥渓ike comprehending what someone says 鈥 or my fatigue levels in dealing with things that can come on post-brain injury, like anxiety and depression.
live with an acquired brain injury, two thirds occurring before the age of 25 鈥 yet their experiences are often misunderstood.听
For people with ABI, everyday interactions can be overwhelming and complex 鈥 particularly in a world that delivers information quickly and in large volumes.听
鈥淵oung people with brain injuries have so much potential that isn鈥檛 being realised,鈥 says Kate Heine, Founder and Managing Director of 鈥 Australia鈥檚 only youth-specific brain injury organisation. 鈥淭hat鈥檚 largely because of the lack of ability of our society to create an accessible world.鈥澨
That鈥檚 where digital humans are starting to make a difference.听
Hailey Barber McKirdy, Bey Alivand, Kate Heine and Dr Mike Seymour (from left) are co-designing a digital human to support young people after brain injury. Photo supplied.
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鈥淲e think digital humans can put a face to technology 鈥 making it more familiar, acceptable and someone you can actually talk to,鈥 says Dr , Director of 听in the University of Sydney鈥檚 Business School. 鈥淲e鈥檙e producing digital assistants that would facilitate young people with ABI to connect more with society and with those around them.鈥
A digital human is a combination of artificial intelligence and a computer-generated avatar that looks and behaves like a real person. It can interact in conversation and show realistic human facial expressions 鈥 all in real time.
PhD student Bey Alivand is working alongside Mike to research and develop these tools.
鈥淵ou can ask questions in your own time and calmly talk through the answers at a pace that suits you,鈥 Bey explains. And interactions with digital humans can be adapted 鈥 the digital human can slow down, simplify language, based on what each user needs.鈥澨
The key to this research is working directly with people who live with ABI to shape the technology around their real, everyday needs.
Hailey is working closely with , as a Lived Experience Consultant, to design the digital human program with the University of Sydney.
鈥淭his project is all about co-design with the community,鈥 Hailey says, 鈥渂eing asked what you need, instead of being handed something and told it鈥檚 for you, is quite a breath of fresh air.鈥
鈥淲e鈥檙e actually talking to people living with acquired brain injury,鈥 Mike says, 鈥渁nd saying, what are the issues that come up in your life? What are your ideas? So, we鈥檙e talking to people that are actually doing this day-to-day, that's the sort of stuff that's gold and that informs our research.鈥澨
Dr Mike Seymour is designing digital assistants to help young people with acquired brain injury to navigate daily life. Photo: Fiona Wolf
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LinkWith AI, you can think of it like steel. You could use it to make tanks 鈥 or we can use it to make ambulances. We're focused on making ambulances.
Director, Motus Lab
Although this research is all about technology, Bey sees it as deeply connected to an understanding of human needs.听听
鈥淔or me, innovation is about making digital solutions that resonate and truly connect with and enhance human experiences,鈥 Bey says. 鈥淢y goal is to help people to use technology to manage their lives better and stay independent.鈥澨
The potential real-life impact of this work is deeply motivating for the researchers.听
鈥淲e want it to be personalised so that it can be powerful, connecting with people at a human level,鈥 Mike says. 鈥淲hat we like to see is ways that we can enable them to just have a more productive, more connected lifestyle. It鈥檚 a really rewarding thing to see people actually interact with these digital humans.鈥澨
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Dr Mike Seymour and PhD student Bey Alivand are exploring digital solutions to connect with and enhance human experiences. Photo: Fiona Wolf
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LinkTechnology is making life more adaptable, more tailored to us and our needs.
Lived Experience Consultant, Heads Together
Mike acknowledges, however, that it鈥檚 natural for people to have concerns about AI 鈥 but says the reality is, it鈥檚 here to stay.听
鈥淲ith AI, you can think of it like steel. You could use it to make tanks 鈥 or we can use it to make ambulances,鈥 Mike says. 鈥淲e're focused on making ambulances. We want to actually help people with real things that can make a difference in their lives, with this really interesting, incredibly powerful new technology.鈥
鈥檚 Kate Heine believes that this technology could redefine the future for young people with ABI.听
鈥淚t鈥檚 about giving young people with brain injuries the tools they need to be the best version of themselves,鈥 she says.听
For those using it, the impact can be profound.听
鈥淚t鈥檚 like having a cheerleader 鈥 an extra voice in your life,鈥 Hailey says. 鈥淚t鈥檚 amazing to see what鈥檚 now possible. Technology is making life more adaptable, more tailored to us and our needs.鈥
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Top image:听Human interacting with a digital human protoype. Photo: Fiona Wolf